Wednesday, August 7, 2013

Silence



We found some old home videos tucked away in a folder we had lost track of. Ava was about 4-5 months old when the videos were taken. What struck me as I watched was how smiley she was. I remember very few smiles, and yet while watching these videos, she responded with a huge toothless grin every time I smiled at her. Her eyes would light up and there was this huge smile. And yet she was wrapped in a huge bubble of silence.

I listen to babies coo and babble all the time. I play with those sounds in waiting rooms, babbling back and forth with any infant who will play the game with me. Ava was silent. It's a little creepy - all the talking around her and this completely silent little baby. She didn't seem unhappy, she was just silent. She was silent in the bouncer, on the playmat, and in the arms of loved ones. We have some videos of me trying to make her laugh - tossing her gently in the air or creeping tickle fingers up her leg towards her neck. The vast majority of the time I was unsuccessful. The once or twice she managed to giggle, it looked and sounded effortful. And yet, somehow, even as a speech pathologist I managed to miss how exactly abnormal it all was. I was a sleep-deprived mother of a 4 and 19 month old. My professional experience was with preschoolers and school-aged children. At the time, I wasn't getting out much and didn't realize how much noise babies should be making.

There was a video where... well, I have no idea exactly what I was trying to capture in the video, but Ava was laying on her back on the floor. She couldn't roll over yet and looked a lot like a turtle stuck on her back. She was obviously frustrated. She was lifting her head and shoulders and waving her arms and staring straight at me. And there were no sounds. None at all. No grunting, no fussing, no crying even. Just silence in the presence of frustration and physical effort. And why exactly did it take me 18 more months to start assessment?

Has anyone had similar experiences with their apraxic children? If you go back and watch videos when they were babies are they silent? I know that "abnormal history of babbling" is a red flag for apraxia, but this complete silence... Anyone?

5 comments:

  1. Love your blog!! I visit it frequently and print off pages to use with two of my children who have Apraxia. And yes, my apraxic son was a completely silent baby. Never babbled or cooed at all. Almost never cried either. I remember it was very difficult to even get him to laugh. There was a time when he was 25 months old and we were at a family reunion for the weekend. He still had never said a word or even mimicked a sound. I told all my family members that I would pay $1,000 to whoever could get him to say "Hi." They all worked with him that whole weekend, trying to get "Hi" out of him. It would be another year before he ever said "Hi." His apraxia is pretty severe. He is five now. My daughter's apraxia isn't nearly as bad. She did coo and babble as a baby. Her speech just never changed from baby babble. She has been diagnosed with phonological process disorder and mild apraxia. She is 3 now.

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  2. I was able to overcome senile dementia via a complete naturopathic process.

    About two years ago, when I was 56, I started feeling foggy and had occasional memory lapses. My wife, Mary, started to notice it, too, but I also have hearing issues so she thought that was the problem. My memory problems worsened very gradually over the years, and we lived with it, compensating as needed. I became less social. After some months thereafter, it got to the point where we couldn’t keep making excuses or ignoring it. I had gone from doing our grocery shopping without a list to going with a list, to having the list but not buying what was on it.

    Mary went online to do some research, and it was during this process we had been fortunate enough to come across Dr. Utu Herbal Cure: an African herbalist and witch doctor whose professional works had majored on the eradication of certain viral conditions, especially dementia, ( improving the memory capacity positively), via a traditional, naturopathic process and distinguished diet plan. It was by the administration of this herbal specialist that I had been able to improve my condition for better. So to say, the encounter with the above-mentioned herbal practitioner was the first time we ever heard there was something that possibly can be done to improve my memory functionality.

    By the existence of such an encounter, I was able to learn of the new approach by which this herbalist successfully treated dementia conditions, which included a distinguished herbal therapy and lifestyle changes of which I had undergone to a tremendous, positive effect.
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    In brief, I was able to go through the dreadful hollows of senile dementia without any further hazardous damage to my health condition, and within a short period. Had it not been for the support of my wife, of whom had encouraged me to undergo the above-mentioned therapy and that of the herbal practitioner of whom now happens to be benefactor - I would have been long exposed to the further perils of this condition and of which had been apt to result to a calamitous end.

    I would also wish for the same positiveness upon patients who may happen to be suffering from this debilitating disease, and would warmly beseech them to find a confidant like this herbal specialist with whose professional services I was able to achieve a divine recovery.

    For further information concerning this African traditional medication for Alzheimer's malady; feel free to contact Dr. Utu directly via email: drutuherbalcure@gmail.com

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  3. Hi, there. I am Tom Neil and I wish to describe how life had been for my younger brother living with schizophrenia and how he had been permanently able to overcome this debilitating disease via naturopathic, herbal means.

    Maicon - my kid brother was twenty years old when he was carried to the emergency room by the campus police of the college from which he had been suspended several months ago. A professor had called and reported that he had walked into his classroom, accused him of carrying his tuition money and refused to leave.

    Although he had much academic success as a teenager, his behavior had become increasingly odd during the past year. He quit seeing his friends and no longer seemed to care about his appearance or social pursuits. He began wearing the same clothes each day and seldom bathed. He lived with several family members but rarely spoke to any of them. When he did talk to them, he said he had found clues that his college was just a front for an organized crime operation. He had been suspended from college because of missing many classes. My sister said that she had often seen him mumbling quietly to himself and at times he seemed to be talking to people who were not there. He would emerge from my room and ask my family to be quiet even when they were not making any noise.

    My father and sister told the staff that Maicon's great-grandmother had had a serious illness and had lived for 30 years in a state hospital, which they believed was a mental hospital. Our mother left the family when Maicon was very young. She has been out of touch with us, and they thought she might have been treated for mental health problems.

    Maicon agreed to sign himself into the psychiatric unit for treatment. The whole family except I had agreed to have Maicon transferred to a mental asylum. I knew inwardly there was still some plausible means by which my kid brother could overcome this condition. I knew botanical means of treatment will be more favorable than any other type of treatment, and as such, I had taken a keen interest in the research of naturopathic alternative measures suitable for the treatment of schizophrenia. I had pleaded for some little patience from the family in the delay of the transfer, I was looking forward to proving a point to the entire family, of a positive botanical remedy for this condition.

    It was during my ceaseless search on the internet I had been fortunate enough to come across Dr. Utu Herbal Cure: an African herbalist and witch doctor whose professional works had majored on the eradication of certain viral conditions, especially schizophrenia, ( improving the memory capacity positively), via a traditional, naturopathic process and distinguished diet plan. It was by the administration of this herbal specialist that my brother had been able to improve his condition for better.

    Before the naturopathic remedy - Maicon's story had reflected a common case, in which a high-functioning young adult goes through a major decline in day-to-day skills. Although family and friends may feel this is a loss of the person they knew, the illness can be treated and a good outcome is possible.

    My brother Maicon is just like many other patients out there suffering from this disease. Although he was able to overcome this condition via a naturopathic herbal remedy administered by this African herbal physician and saved completely thus, rekindling the lost joy which had been experienced by the family members.

    I wish to use this opportunity to reach across to anyone who may happen to be diagnosed with this disastrous condition to spread the hope of an everlasting herbal remedy that is capable of imposing a permanent end to this disease.

    For more information concerning this naturopathic herbal remedy, feel free to contact this African herbal practitioner via email:
    drutuherbalcure@gmail.com

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