Blog Post I Enjoyed Most: Robert Rummel-Hudson is a father of a daughter with polymicrogyria (a rare neurological disorder) which effects speech in addition to many other things. He has written a book about his journey with his daughter, Schuyler. He also writes a blog and I particularly enjoyed his most recent post. This particular post has little to do with Schuyler but much to do with frustration. I also enjoyed the Office Space reference.
Interesting Apraxia Article: Here is an article I found on the Apraxia-Kids website about trying to get insurance coverage. I’m just starting to seriously research this topic so I’m sharing one of my first finds. I intend to do a full post on this when I get a little further in the process.
Ava’s new favorite phrase: I love this one. This week she’s started saying, “O-tay (okay) Mama.” I’ll say, “Let’s go put your shoes on.” and she’ll reply, “O-tay Mama.” It really is adorable. She says it in the cutest way and it’s a nice contrast from last week’s constant “no.” We still hear lots of “no,” but at least we’re hearing some agreeableness too.
Ava's second new favorite phrase: I don't love this one quite as much. "Na (not) Dada. Mama." This is repeated several times in urgent succession any time my husband attempts to help with Ava's care. I have mentioned the Mama stage she's going through?
Michael's Phrase of the Week: "Daddy, will you come play with me?" This request has been constant this week whenever my husband is home. I'll admit to a little bit of quiet amusement every time I hear it. Ava has been going through that Mama phase. I enjoy seeing the tables turned a little with Michael.
Favorite Project of the Week: My favorite this week was definitely the eye dropper art with the kids. It was a lot of fun.
I am really enjoying your blog. I discovered it tonight while researching apraxia. My son was diagnosed with "motor speech disorder" this week. He is 28 months. I am pretty sure he has apraxia but they won't say that yet.
ReplyDeleteI love the " o Tay mama". Our favorite at our house is,"oh dear!"
I'd love to hear, "Oh dear!" That sounds adorable. Hmm... perhaps I'll try to teach it to Ava.
ReplyDeleteGood luck with your son. It is pretty common for them to want to wait to diagnose CAS in little ones. If you haven't already found it, you can read more about that here: http://testyyettrying.blogspot.com/2011/04/what-is-childhood-apraxia-of-speech-and.html
If you have any questions or just want to talk, please feel free to send me an email.