Wishing for Another Year (Upcoming Evaluation Anxiety)

In quiet moments I am beginning to experience a sense of unease about upcoming changes. In five and a half months Ava will age out of early intervention. Before then she will be evaluated by our local school district to determine if she will continue to qualify for services.

Things are going so well right now. Ava has been making steady progress in speech. We finally identified a need for OT and are just now beginning to receive those services as well. The combination of speech and occupational therapy services is powerful and she is making progress.

I am both profoundly grateful for that progress and somewhat fearful of it at the same time. I am happy that Ava's ability to communicate is improving and her frustration is decreasing. I am happy that she's making progress towards her feeding goals. I am delighted to see her become a bit bolder with sensory exploration and a little less overwhelmed in environments that used to be overstimulating for her. At the same time, I am afraid that she will have made just enough progress that she will not qualify for services at the next level.

I feel like we are standing before a diverging path. One path takes us down a road where we can continue intense intervention through these early years and maybe, just maybe find ourselves in a place where she no longer needs extra help later on. I desperately want that path for her.

The other path involves being denied services. We will try to provide her with as many services as possible without help from the school district but it won't be the same. I worry that the second path will involve less intense intervention that results ultimately in her needing extra help for a much longer period of time.

I know it isn't that simple. I know there are always options even if they aren't the ones I want most. I just feel like this transition from the early intervention program happens so quickly. Many children are just settling into a program of services when they "age out" and have to go through another round of testing. Then, even if they do qualify, they go through another round of getting to know new therapists when the old ones were working perfectly well to begin with.

I find myself wishing that early intervention went just a year longer. Of course, I'm sure I'd still dread the transition even then, but at least she would have had the same set of therapists for 18 months rather than for 6 months by then.

It Was An Innocent Idea - Honest

I decided to recreate the success of the shaving cream in the water table day. Except this time I thought it would be fun to bring the water table up to the increasingly complete deck. I just thought the kids would enjoy the change of scenery and I knew I would love to sit on my swing while watching them instead of perched in a lawn chair in the yard down below batting away gnats. Also, for another change of pace, I decided to try cool whip (or some generic brand that was cheaper) instead of shaving cream.

First, let me say that the children did have a wonderful time. From their perspective, an hour flew by in absolute bliss as they flung first cool whip, and then water all over most of the deck. However... I don't think I completely understood how difficult it would be to remove cool whip from the wood after it had been sitting there a while. I innocently assumed that it would spray away easily with the hose. It took a bit more effort than that. Let's just say that my husband wasn't delighted with the experiment when he heard about it that evening.

As much fun as the children had with the activity, I found it interesting that they were much less bold without a friend over to model playing in it with her hands. They mostly used spoons and other various kitchen implements to play in the cool whip. They also ran over to the hose to rinse their hands and bodies off frequently. Baby steps I suppose. I need to invite friends over for these sensory activities more often.

Speedy Progress Right Off a Cliff

So Ava continues to do well with her feeding hierarchy. She's pretty much just accepted that she has to take a bite of the food she doesn't like in order to receive more of the food she wants.

Her technique so far has been to pop that food in her mouth and let it sit front and center on her tongue as if I had put something horrendously nasty in there. She grabs her milk and swallows it down as if it were a pill-tasting it as little as possible. In the name of substantial progress, I was letting the fact that she was treating perfectly yummy food like dirt go.

Well, yesterday morning, in the middle of our weekly OT session I had set her plate up with small pieces of sausage. They were the size of large blueberries. A bowl of cheerios to use as a reward had been set to the side. She asked for cheerios. I told her she'd need to eat a small bite of sausage first and I stepped away from the table to grab a knife. Usually I cut a tiny sliver off the larger piece of sausage for her to try.

Well, when my back was turned she popped the entire piece of sausage in her mouth and tried to swallow it whole by gulping several large gulps of milk. I turned around to see her choking back up all the milk and finally (thankfully) the piece of sausage too right back into her lap.

I calmed her down, cleaned her up, and told her I was proud of her for trying such a big piece. I then tried to explain that we can't swallow such big pieces without chewing them first. I'm pretty sure she didn't really get it.

So now we're working on teaching her to put food in the side of her mouth and to chew it up in an exaggerated way. We're teaching the technique with foods she likes first. Once she's really good at it, I'll have to insist she actually chew the things she doesn't like before swallowing them and getting a reward.

I'm pretty sure that this next step forward is going to be a big struggle.